TY - JOUR
T1 - Involving different stakeholders in prioritising outcomes to assess healthcare systems response for type 1 diabetes management
T2 - Using co-creation approaches in Peru
AU - Zafra-Tanaka, Jessica Hanae
AU - Almeida, Guillermo
AU - Andrade Montalvo, Jackelyn Elizabeth
AU - Anza-Ramirez, Cecilia
AU - Jauregui, Josselyn
AU - Perez-Leon, Silvana
AU - Lazo-Porras, Maria
AU - Mayo-Puchoc, Nikol
AU - Taype-Rondán, Alvaro
AU - Miranda, J. Jaime
AU - Beran, David
N1 - Publisher Copyright:
© 2024 The Author(s). The International Journal of Health Planning and Management published by John Wiley & Sons Ltd.
PY - 2024
Y1 - 2024
N2 - Background: Engaging diverse stakeholders in developing core outcome sets (COSs) can produce more meaningful metrics as well as research responsive to patient needs. The most common COS prioritisation method, Delphi surveys, has limitations related to selection bias and participant understanding, while qualitative methods like group discussions are less frequently used. This study aims to test a co-creation approach to COS development for type 1 diabetes (T1DM) in Peru. Methods: Using a co-creation approach, we aimed to prioritise outcomes for T1DM management in Peru, incorporating perspectives from people with T1DM, caregivers, healthcare professionals, and decision-makers. A set of outcomes were previously identified through a systematic review and qualitative evidence synthesis. Through qualitative descriptive methods, including in-person workshops, each group of stakeholders contributed to the ranking of outcomes. Decision-makers also discussed the feasibility of measuring these outcomes within the Peruvian healthcare system. Results: While priorities varied among participant groups, all underscored the significance of monitoring healthcare system functionality over mortality. Participants recognized the interconnected nature of healthcare system performance, clinical outcomes, self-management, and quality of life. When combining the rankings from all the groups, metrics related to economic impact on the individual and structural support, policies promoting health, and protecting those living with T1DM were deemed more important in comparison to measuring clinical outcomes. Conclusion: We present the first COS for T1DM focused on low-and-middle-income countries and show aspects of care that are relevant in this setting. Diverse prioritisation among participant groups underscores the need of inclusive decision-making processes. By incorporating varied perspectives, healthcare systems can better address patient needs and enhance overall care quality.
AB - Background: Engaging diverse stakeholders in developing core outcome sets (COSs) can produce more meaningful metrics as well as research responsive to patient needs. The most common COS prioritisation method, Delphi surveys, has limitations related to selection bias and participant understanding, while qualitative methods like group discussions are less frequently used. This study aims to test a co-creation approach to COS development for type 1 diabetes (T1DM) in Peru. Methods: Using a co-creation approach, we aimed to prioritise outcomes for T1DM management in Peru, incorporating perspectives from people with T1DM, caregivers, healthcare professionals, and decision-makers. A set of outcomes were previously identified through a systematic review and qualitative evidence synthesis. Through qualitative descriptive methods, including in-person workshops, each group of stakeholders contributed to the ranking of outcomes. Decision-makers also discussed the feasibility of measuring these outcomes within the Peruvian healthcare system. Results: While priorities varied among participant groups, all underscored the significance of monitoring healthcare system functionality over mortality. Participants recognized the interconnected nature of healthcare system performance, clinical outcomes, self-management, and quality of life. When combining the rankings from all the groups, metrics related to economic impact on the individual and structural support, policies promoting health, and protecting those living with T1DM were deemed more important in comparison to measuring clinical outcomes. Conclusion: We present the first COS for T1DM focused on low-and-middle-income countries and show aspects of care that are relevant in this setting. Diverse prioritisation among participant groups underscores the need of inclusive decision-making processes. By incorporating varied perspectives, healthcare systems can better address patient needs and enhance overall care quality.
KW - co-creation
KW - core outcome set
KW - outcomes
KW - type 1 diabetes
UR - http://www.scopus.com/inward/record.url?scp=85198955038&partnerID=8YFLogxK
U2 - 10.1002/hpm.3821
DO - 10.1002/hpm.3821
M3 - Artículo
AN - SCOPUS:85198955038
SN - 0749-6753
JO - International Journal of Health Planning and Management
JF - International Journal of Health Planning and Management
ER -